Friday 12th July 2024, London and onlinePDFs of presentations:Getting new therapies: the rare disease problem - Danny Gale, RaDaR DirectorFertility, Reproduction, Educational and Developmental Attainments in offspring: the FREDA study - Hannah Beckwith, King's College LondonKidney Patient Reported...

Pre-print reporting the distribution of epidemiology and clinical characteristics of RaDaR participants (Wong et al MedRxiv, 2023; (https://www.medrxiv.org/content/10.1101/2023.09.24.23296009v1)

Long term outcomes in IgA nephropathy (Pitcher et al Clinical Journal of the American Society of Nephrology, 2023; https://pubmed.ncbi.nlm.nih.gov/37055195/

Click here is view latest patient newsletter

Karger has launched a new open access online journal, free to authors and readers, exclusively focused on the glomerulus called “Glomerular Diseases” . This journal is keen to welcome original research, reviews, case reports of unique value, and patient-centered research and commentary with a focus...

More details about the study HEREAlso Newsletter available HERE

The annual, national Kidney Patient Reported Experience Measure (Kidney PREM) is open to NHS kidney patients in the United Kingdom for six weeks from 1st October – 12th November.2020 is the fourth year of the validated Kidney PREM and for the first time, it has gone fully digital.The Kidney PREM...

Please click HERE to see the poster

Progress ReportLink to RaDaR summer newsletter