Improving patient experience of shared decision making and support: Our response to the 2017 Kidney Patient Reported Experience Measure
Imperial College Healthcare NHS Trust
The UK Renal Registry and Kidney Care UK made the 2017 Kidney PREM results available to our Renal Directorate late in April 2018. We learned that our patients had reported that that we particularly needed to improve patient experience of Sharing Decisions and Support.
Our renal leadership team reviewed and presented our Kidney PREM results to the wider team at one of our monthly, multi-disciplinary “Renal Grand Rounds”, facilitating analysis and formulation of an action plan. Elements of the action plan are laid out below, and our Lead Nurse for Dialysis, Virginia Prout, explains the progress made so far (at December 2018):
Design and implementation of Head Nurse Clinics, held at all our Satellite Dialysis Centres to allow unhurried, long term and short term care planning and discussion about treatment goals.
As Renal Services at Imperial are so spread out, and our patient numbers are very large, clinic appointments are always highly sought after, and it was not always easy to allocate sufficient time for thoughtful, unhurried discussions with Consultants about issues such as increasing frailty, or bespoke identification of goals of care. Our Head Nurses work in close partnership with a dedicated Consultant Nephrologist and are ideally placed and experienced, able to offer longer appointments, with patients and their families, at times that suit all concerned. Most of our Dialysis Head Nurses are non-medical prescribers, and can offer thorough medication reviews too
Implementation of a Frailty Scoring Tool (with appropriate follow up / referral) across all Dialysis Centres
The Edmonton Frailty Scoring tool has been used to assess around 1,500 of our haemodialysis outpatients. The teams are using the information for a wide variety of purposes, including identification and support for those with suspected cognitive decline, those who are most at risk of falls, and those most in need of dietetic, psychological or social support. Through this process, we were also triggered to re-assess who might benefit from pharmacy or therapies input.
Investigation into the value and best method of rolling out of a patient peer support programme
Eleri Wood, Nurse Consultant at Kings College Hospital will be presenting at our Dialysis Academy, to be held in March this year. She will talk about the role of peer support for haemodialysis patients. The Dialysis Academy is our bi-annual, two day programme of education, where we welcome our own, and any other doctors, nurses and allied health professionals who care for people treated with dialysis for end stage renal failure. We hope this session will provide us with inspiration and knowledge we need to set up our own Peer Support service here at Imperial.
On-going promotion of Shared Care – dialysis therapy delivered by, or in partnership with trained and willing patients
There are now a few Head Nurses and link nurses who are championing this in their clinical areas. We have a centrally-held list of the names of patients who are participating in shared care. This list helps us to systematically identify people who should be prioritised for full home dialysis training. We now offer home dialysis training at two of our satellites, as well as at the hub. Our home haemodialysis nursing team has grown too.
Recognition that a nurse could very usefully lead on the education / implementation of various frailty, communication- related and end of life care planning issues
We will soon be appointing a nurse lead who has a very keen interest and relevant experience. Participation in the Kidney PREM and the subsequent development and implementation of the action plan has enabled us to change and develop some key aspects of our service. We hope that patients will gradually perceive themselves to be more involved in their care planning, and in some cases, in their care delivery too. We are genuinely trying to find out what matters most to our dialysis patients, and to identify what they believe are their unmet needs. We aim to work with them, as partners, as we address these needs.
